The Community That Showed Up
“We are Nabeel and Syahirah, parents of Baby Zayn, who was diagnosed with Type 1 Spinal Muscular Atrophy on 12 August 2022 as an one-month-old baby.
Our Stories
The Lighthouse That Brightens Up The Darkest Seas
Hidayah, a first-time mommy to Bella who was born in May 2022, shares her family's recent experience at the Ronald McDonald House when Bella was admitted into the Paediatric Intensive Care Unit.
A Mother's Perseverance
Emily*, a beneficiary of our Ronald McDonald Family Room at the Institute of Mental Health (IMH), shares her story of her daughter, Natalie's* Depression.
A Home Away From Home
At just 2 weeks old, Elvia was diagnosed with a rare disorder, Maple Syrup Urine Disease (MSUD) Classic. Since then, Elvia has been in and out of the hospital almost every month, with each admission lasting anywhere between 1 week to 3 months. On top of her underlying condition, Elvia also battles other complications such as Laryngomalacia, Thalassemia Minor and has 3 holes in her heart. Due to her small stomach capacity, she needs to be fed more frequently through a feeding tube.
A Family's Ordeal
We caught up with Noor Ismah, mother to baby Muhd Sayf Ashmin, who was admitted to PICU in January 2022.
A Safe Space of Comfort
Judy* at 64, was supposed to be enjoying her golden years as a grandmother. But due to an unfortunate circumstance, she found herself in an ugly custody battle over her two grandsons, Michael* and Morris*, in which she was eventually successful.
A Family's Quest for Hope
Teh Ghee Lim and his wife, Zen Meilani, travelled from Penang, Malaysia to seek treatment for their 1-year-old daughter, Ping Ann who suffers from Congenital Thrombocytopenia SLFN14 Mutation, a rare blood disease.
Caring for a child with Autism
When James was two years old, he was diagnosed with Autism. With the help of early intervention centers and therapy, James made it through primary school. However, when James turned 12, he started displaying an overtly aggressive behaviour. The fact that he was also going through puberty did not help his mother, Natalie and her husband, and was increasingly tough to control. They subsequently took the decision to home-school James, to help overcome this.
A relaxing space to pass time
16-year-old David was first diagnosed with having ADHD during his Primary School days when the Roving Mobile Clinic made their rounds and came by his school one fateful day. David's mom Elle, a single mum recalls it like it was yesterday.
